Update on Mark
Last month I told y'all (with Marks Permission) about Mark having Hepatitis C with some liver damage. He'd been accepted in a treatment study group at the Liver Institute in Dallas, which we were thrilled about, but before it started he was bumped to a later starting date because of one of his test results. He was able to start the treatment yesterday. He has started the medication which consists of one shot a week of Pegasys, which he gives to himself, and three tablets of Copegus twice a day. He will be going to the institute every two weeks to be checked.
The most common side effects are pretty severe, and he's already suffering them. Flu-like symptoms such as fever, chills, muscle aches, joint pain and headaches. All of which started last night after having his first shot yesterday. Mark has never been a whiner (I know ladies, he's a man...but I'm telling you, he's not a complainer when he's sick), but he feels bad. There is also upset stomach, nausea, taste changes, rashes, hair loss, dizziness and trouble sleeping. These are the most common side effects. Poor babe. I'm not even going into the most serious side effects, we're believing we'll not have to deal with them.
Right now, it's the fever (body aches, chills) and the headaches that's bothering him the most. And, he's really tired. So...he stays on this same cycle of medication for 48 weeks and then he'll be re-evaluated.
We found out Mark had Hepatitis C right after we got married and tried to donate blood together. He hadn't known. It's believed that he must have contracted it when he was born and had to have a complete blood transfusion in 1960. So, considering how long he's had it, he is extremely healthy.
The most common side effects are pretty severe, and he's already suffering them. Flu-like symptoms such as fever, chills, muscle aches, joint pain and headaches. All of which started last night after having his first shot yesterday. Mark has never been a whiner (I know ladies, he's a man...but I'm telling you, he's not a complainer when he's sick), but he feels bad. There is also upset stomach, nausea, taste changes, rashes, hair loss, dizziness and trouble sleeping. These are the most common side effects. Poor babe. I'm not even going into the most serious side effects, we're believing we'll not have to deal with them.
Right now, it's the fever (body aches, chills) and the headaches that's bothering him the most. And, he's really tired. So...he stays on this same cycle of medication for 48 weeks and then he'll be re-evaluated.
We found out Mark had Hepatitis C right after we got married and tried to donate blood together. He hadn't known. It's believed that he must have contracted it when he was born and had to have a complete blood transfusion in 1960. So, considering how long he's had it, he is extremely healthy.
10 Comments:
Im sorry to hear about Mark--all these years and he never knew, Wow. Hopefully the institute will be of help to him
I really enjoy your blog. Cool post.
sorry to hear about this - i know someone who has hep c and they havent needed treatment yet. goodluck to him.
A member of my immediate family also suffers from hepatitus (from a bad blood transfusion at Harris Methodist back in '83), and they underwent a few of the same treatments you described awhile back.
Sometimes it seems like the cure is just as bad as the disease.
OMG....
My sister died on March 9th, 2005 (This year) She had Hep C (From a patient years ago, she was an R.N.)
I'm still not quite over it... But I found a wealth of info, like you can't believe at
HepatitisNeighborhood on the net...
They have a forum too..... I was there a lot the last few months. Not knowing it was the last few months.
I don't have an active link, but you can find it.
My baby sister passed on 1/3/03
I feel all alone sometimes...
I did not notice this post last time I was here...sorry.
I found it:
http://www.hepatitisneighborhood.com/
Please go there, many others are there talking about how they are doing on the treatment you mentioned... and so much, you'll never know, if you don't connect up at that site. They also have Ask The Nurse...
some are waiting for treatment, some are in it and some are off it, it givs you really everything under the sun in regards to this disease.
Thank you!
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